Health & Medical Resources
Resources for you & your health care providers:
Pediatric Medical Guidelines & Resources
- CURRENT Ds Pediatric Medical Guidelines
- Developmental Checklists
- Activities for Newborns-Young Infants
- Social Security Information
- Understanding the roles of providers
- Health Care Guidelines for Infants 1-12 months
- Get a personalized care plan at Down Syndrome Clinic to You (DSC2U) brings the best of health and wellness information about Down syndrome to caregivers and primary care physicians around the globe. In an effort to help everyone access DSL provides $10 coupons for all our families. Request a Coupon!
- Car Seats & Driving
- Hospital Stay Support for families: DSL partners with a local charity, Critically Loved to be sure our families are loved on during long hospital stays. If you have recently heard you will be in the hospital long term, or know of a patient with Down syndrome who will be, please text us their information at 502-333-4478 so that we can notify those who deliver care packages.
Adult Medical Guidelines & Resources
- Medical Care Guidelines for Adults with DS
- Get a personalized care plan at Down Syndrome Clinic to You (DSC2U) brings the best of health and wellness information about Down syndrome to caregivers and primary care physicians around the globe. In an effort to help everyone access DSL provides $10 coupons for all our families. Request a Coupon!
- Hospital Stay Support for families: DSL partners with a local charity, Critically Loved to be sure our families are loved on during long hospital stays. If you have recently heard you will be in the hospital long term, or know of a patient with Down syndrome who will be, please text us their information at 502-333-4478 so that we can notify those who deliver care packages.
- Find more specific medical links based on symptoms below…
For Medical Providers
- For Providers: Comprehensive Care of Children with Ds Password: CHRCO
- CURRENT Ds Pediatric Medical Guidelines
- Medical Care Guidelines for Adults with DS
- Patients can get a personalized care plan at Down Syndrome Clinic to You (DSC2U) brings the best of health and wellness information about Down syndrome to caregivers and primary care physicians around the globe. In an effort to help everyone access the care they need DSC2U has generously gifted DSL $10 coupons for all our families.
Request a Coupon! - Hospital Stay Support for families: DSL partners with a local charity, Critically Loved to be sure our families are loved on during long hospital stays. If you have recently heard you will be in the hospital long term, or know of a patient with Down syndrome who will be, please text us their information at 502-333-4478 so that we can notify those who deliver care packages.
Most Common Medical Issues
Therapies
Thomas Center for Down Syndrome
The center at Cincinnati Children’s offers comprehensive services by experts in a variety of areas including:
- Developmental-behavioral pediatrics
- Care coordination
- Nutrition
- Occupational therapy
- Physical therapy
- Psychology
- Special education
- Speech-language pathology
- Social work
- Transition care (Internal medicine trained providers for adolescents and young adults)
Research & Medical Trials
ASD Dual Diagnosis Autism
Mental Health & Behavior Challenges
- DSL Behavior Services
- Charlie’s Clinic: More on Behavior
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Mental Wellness in Adults with Down Syndrome Written by a leading expert in the care of adults with Down syndrome, this book is key for the families of teenagers and adults with Down syndrome. The second edition will be coming out this year
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COVID-19 & Down Syndrome
Regression
Puberty
- UCSF: Addressing Puberty in Children with Special Needs without Frustration Password: CHRCO
- Charlie’s Clinic: Puberty
- BOOKS:
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- The Girls Guide to Growing UP
A great resource for families of young women going through puberty. Written by a leading expert on Down syndrome
- The Girls Guide to Growing UP
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- The Boys Guide to Growing Up
A great resource for families of young men going through puberty. Written by a leading expert on Down syndrome - Teaching Children with Down syndrome about their Bodies, Boundaries & Sexuality
- The Boys Guide to Growing Up
- More info. in the following Relationships & Sexuality section…
Blood Diseases & Down Syndrome
Dental Issues & Down Syndrome
Ear, Nose, & Throat (ENT) & Down Syndrome
Endocrine Conditions & Down Syndrome
Dermatologic Issues in Down Syndrome
Gastrointestinal System and Down Syndrome
Courtesy of NDSS
Surgery & Down Syndrome
The Heart & Down Syndrome
Vision & Down Syndrome
Foot Issues & Ds
COVID-19 & Ds
- DSL Webinars with Dr. Priya Chandan
- Global: COVID & DS
- NDSS: COVID-19 Educational Resources