Health & Medical Resources

Pediatric Medical Guidelines & Resources

Adult Medical Guidelines & Resources

For Medical Providers

Therapies

Most Common Medical Issues

Download Your IEP Binder

Research & Medical Trials

Nutrition & the DS Diet

Assistive Technology

• Louisville AAC Device support group on FB
• Entech-  resource for Assistive technology
• Borrow, buy used or try out different AT devices

ADHD & Down Syndrome

• NDSS: ADHD & Ds
• Attention problems in Down syndrome: Is it ADHD?
• Cincinnati Children’s: Evaluating Assessment and Medication Treatment of ADHD in Children with Down Syndrome

ASD Dual Diagnosis Autism

• NDSS: ASD Resources
• Lumind: Alzheimers Disease & DS
• UCSF: Dual Diagnosis Password: CHRCO
• Books:
  • A New Course: A Mother’s Journey Navigating Down Syndrome and Autism
  • When Down Syndrome and Autism Intersect
• DSL: DS-ASD Q& Answer with the Down Syndrome- Autism Connection
• FEAT Louisville Autism Group 

Mental Health & Behavior Challenges

• DSL Behavior Services
• Mental Wellness In Adults with Down Syndrome E-Book
• Supporting Positive Behavior in Children and Teens with Down Syndrome
• Common Behavior Issues & Recommendations for Children (and Adults) with Down syndrome
• Common Behavioral Issues & Recommendations for Children with Down Syndrome in Spanish
• DSL Family Recorded Education Session on Behavior
• DSDN: Supporting Positive Behavior with Dr. David Stein
• Charlie’s Clinic: More on Behavior
• Books:
  • Mental Wellness in Adults with Down Syndrome Written by a leading expert in the care of adults with Down syndrome, this book is key for the families of teenagers and adults with Down syndrome. The second edition will be coming out this year
  • Supporting Positive Behavior in Children and Teens with Down Syndrome

Dementia & Ds

• DSL: Aging with Ds Page
  • NDSS: Aging Resources
  • Positive Approach to Care Podcast

COVID-19 & Down Syndrome

• COVID-19 & Down Syndrome
• DSL Webinars with Dr. Priya Chandan
• Global: COVID & DS
• NDSS: COVID-19 Educational Resources

Regression

• 2022 Recorded Session with Dr. Jenny Kimes
  • Regression in Adolescents and Adults with Ds
  • Ease Catatonia in Ds

Puberty

• UCSF: Addressing Puberty in Children with Special Needs without Frustration Password: CHRCO
• Charlie’s Clinic: Puberty 
• BOOKS:

• More info. in the following Relationships & Sexuality section…

Relationships & Sexuality

• NDSS: Relationships & Sexuality
• DSRF Canada: Education Video about Sexulatiy for those with Down syndrome
• Preventing Exploitation: A Kindness Warrior Podcast
• DSRF Canada: Love is Love, Down syndrome & Sexuality 

Blood Diseases & Down Syndrome

• NDSS: Ds & Blood Diseases

Dental Issues & Down Syndrome

• NDSS: Dental Issues & Ds
• Charlie’s Clinic: Ds & Dental Issues

Ear, Nose, & Throat (ENT) & Down Syndrome

• Starkey Hearing Loss Resources
• NDSS: Ear Nose & Throat

Endocrine Conditions & Down Syndrome

• NDSS Endocrine Conditions Syndrome

Dermatologic Issues in Down Syndrome

• UC: Dermatologic Issues in Down Syndrome

Gastrointestinal System and Down Syndrome

Courtesy of NDSS

Sleep & Down Syndrome

• NDSS: Sleep & Ds
• NDSS: DS & Sleep Apnea
• Visual Story about going for a Sleep Study
• Cincinnati Children’s: Sleep & DS
• Sleep Study: What to Expect, Cincinnati Children’s

Surgery & Down Syndrome

The Heart & Down Syndrome

Vision & Down Syndrome

• NDSS: Vison & Down syndrome
• Down syndrome & Keratoconus: A Parent’s Perspective
• NDSS: Eye Health 101

Foot Issues & Ds

• Charlie’s Clinic: Foot Pronation