Down Syndrome Clinic to You (DSC2U) brings the best of health and wellness information about Down syndrome to caregivers and primary care physicians around the globe. We believe that location and personal finances should never prevent someone from accessing the best and most timely medical information for a loved one with Down syndrome. In an effort to help everyone access the care they need DSC2U has generously gifted DSL $10 coupons for all our families! Please fill out the form below if you are interested in receiving a coupon!
*Coupons are limited and will be distributed on a first-come-first-served basis
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What is Down Syndrome Clinic to You (DSC2U)?
We see DSC2U as a way for families to get up-to-date, personalized health and wellness information for their loved one with Down syndrome. When caregivers access DSC2U online, they will be asked to identify current symptoms in their loved one with Down syndrome along with any past medical or behavioral diagnoses and any recent blood work or diagnostic testing. DSC2U also contains optional questions about nutrition, education, therapies, life skills, and community resources. Their responses will be analyzed by a computer, based on state-of-the-art guidelines designed by national Down syndrome experts.
The caregiver will instantly receive two personalized documents: one for themselves and one to share with their primary healthcare provider. These documents contain customized suggestions that are designed to help their loved one get healthcare tailored to their own specific needs. The documents are based on the caregiver’s answers to the DSC2U survey and draw on national guidelines for the care of persons with Down syndrome.
DSC2U does not offer direct access to physicians at Massachusetts General Hospital, nor does it offer caregivers access to MGH physicians by e-mail, text, phone, or videoconference. It is not meant to help in emergencies or to address urgent medical issues. For those circumstances, please call 9-1-1 in the U.S. or go to your nearest medical provider. DSC2U offers instead the most current recommendations and resources to caregivers through personalized online documents.
Who created DSC2U?
DSC2U was created by Dr. Brian Skotko, MD, MPP, and the clinical and research teams from the Down Syndrome Program and Lab of Computer Science at Massachusetts General Hospital, a not-for-profit academic hospital affiliated with Harvard Medical School. The team worked in close consultation with key stakeholders, including parents and caregivers of people with Down syndrome, representatives of Down syndrome advocacy organizations, primary care physicians, and national medical experts.
Sample Caregiver Checklist
Sample PCP Plan
Video about DSC2U