Board Spotlight – Meet Sarah

rosenI was born and raised in Louisville with my 2 older brothers (Jason and Josh – yes I am the baby and the only girl). My father was a Home Builder and my Mother was a Registered Nurse and homemaker.

I attended St. Bartholomew for elementary and middle school. Graduated with Honors from Assumptions High School. Gained my undergrad at Eastern Kentucky University and finished my MBA at the University of Louisville. I have worked with Humana now for 16 years, which is where I met my Husband on day one. ☺

DSL came into my life at a much unexpected time. Our daughter Lola was born on May 26, 2010. At the time of her birth she was diagnosed with Down syndrome. My husband and I naturally were in shock of this and were not sure how we should or could navigate this diagnosis. That is until DSL came into the picture that very next day. Instantly providing us with education and support to help guide us along this journey. DSL connected us right away with First Steps so that we may get Lola the early intervention/therapies that she needed.

We soon began to attend the infant classes where we were able to meet other parents and to begin to develop new friendships that remain today!

Early 2012, we found out that we were pregnant again! We were so excited to be able to have another child and to give Lola a sibling. At 21 weeks, after having the T21 test (noninvasive blood test) we found out that our son Oliver would also have Down syndrome. Our hearts sank. This wasn’t the result we were expecting. Similar to our first birth diagnosis, there were tears, guilt, anger, and lots of unknowns.

However, we realized that we now had the tools, the knowledge, the support, and DSL family to guide us threw once again. You see, we already know the beauty of Down syndrome and the sense of “family” that exists in the Down syndrome community.

Fast forward to today. Lola is a smart, beautiful, outgoing, dance-loving, cheetah print-wearing 11-year-old. Oliver, is the smart, funny, quirky, million-dollar smile boy that just turned 9 in December. Time sure does fly when you are having fun!

Down syndrome is a beautiful journey we had never planned on, but would never dream of leaving because we know what it’s like. We treasure our experiences at face value, we slow down and enjoy the little moments in life, we celebrate every single milestone (big or small), and most of all, we celebrate life, because our lives are better with Down syndrome in it.

I have been a member of the Board now for over 2 years. My commitment to DSL is to simply pay it forward. Which is the least that I can do, given how much DSL has given to our family.

sarah

Tagged Items:

Similar Articles

Woodford Reserve/DSL Bottle Pre-Order

Down Syndrome of Louisville and Woodford Reserve have collaborated for a truly unforgettable 2022 Holiday Season! There will be 75 exclusive bottles of Woodford Reserve Distiller’s Select engraved with the Down Syndrome of Louisville logo at two different Evergreen Liquors locations. (150 total!) You can use this form to reserve your bottles ahead of time. By filling […]

Read More

Down Syndrome of Louisville Members Featured in Times Square Video in New York City

Watch WDRB coverage of this event here. Phil Mason, Allen Norton, and Mabelle Holmes helped kick off Down Syndrome Awareness Month in annual National Down Syndrome Society video presentation NEW YORK (Sept. 19, 2022) – Local Down Syndrome of Louisville members Phil Mason, Allen Norton and Mabelle Holmes appeared in the bright lights of Broadway on […]

Read More

Meet our 2022 Annual Award Winners…

Congratulations to our 2022 Award Winners!  Joseph O. Thomas Volunteer Award goes to Tom Round – For extraordinary volunteer service to Down Syndrome of Louisville. “Tom’s son Brady was born in 2021 and he has hit the ground running for us! Videos, photographs, and any other media related content we need he has come through with […]

Read More

#GiveforGoodLou 2022 was GROOVY!

We had a GROOVY #GiveforGoodLou this week and raised $20,320 in less than 24 hours. THANK YOU TO OUR 94 DONORS and OUR GENEROUS $10,000 MATCH! And thank you to the Community Foundation of Louisville for hosting such a wonderful day of giving! We are so grateful to our Kindness Warrior Community!  

Read More

DSL Day at Churchill Downs!

Spend a day at the track celebrating Down Syndrome of Louisville! SUNDAY, SEPTEMBER 18th! Gates open at 11:30 and the first race is at 12:45. Our races are 4,5,6, & 7! You can purchase general admission tickets HERE!

Read More

18 Stories for 18 Stories: River

18 Stories for 18 Stories On October 22nd, dedicated members of our community will be rappelling down 18 stories of the Hyatt Regency of Louisville in support of DSL as a part of Over The Edge 2022. We’re sharing 18 different stories about what DSL means to our members, their loved ones, and our community […]

Read More

18 Stories for 18 Stories: Ankur Chandan

It’s time for another installment of 18 Stories for 18 Stories On October 22nd, dedicated members of our community will be rappelling down 18 stories of the Hyatt Regency of Louisville in support of DSL as a part of Over The Edge 2022. We’re sharing 18 different stories about what DSL means to our members, […]

Read More

18 Stories for 18 Stories: Emily Bush

18 Stories for 18 Stories On October 22nd, dedicated members of our community will be rappelling down 18 stories of the Hyatt Regency of Louisville in support of DSL as a part of Over The Edge 2022. We’re sharing 18 different stories about what DSL means to our members, their loved ones, and our community […]

Read More

DSL Member, Jill Wright, cast in Sister Act the Musical

Congrats to DSL Member, Jill Wright, on being cast in Redline Performing Arts Company’s upcoming production of Sister Act the Musical! “Sister Act is the feel-good musical comedy smash based on the hit 1992 film that has audiences jumping to their feet! Featuring original music by Tony- and eight-time Oscar winner, Alan Menken (Newsies, Beauty […]

Read More

ATTENTION THRILL SEEKERS

You have ONE HUNDRED days until it’s time to go OVER THE EDGE for Down Syndrome of Louisville. – Anyone who raises $1,000 or more gets to send someone Over The Edge of Louisville Hyatt Regency in Downtown Louisville. – If $1500 is raised, you get to wear a GoPro to document the experience. – […]

Read More

Advocacy Alert: Take Action

TAKE ACTION ACTION ALERT: ASK CONGRESS TO FULLY FUND THE INDIVIDUALS WITH DISABILITIES EDUCATION ACT The Individuals with Disabilities Education Act (IDEA), originally passed in 1975, guarantees all students with disabilities the right to a free and appropriate public education in the least restrictive environment. Along with the rights to students and families conferred by IDEA, […]

Read More

Board Spotlight – Meet Shelby

Hello everyone! My name is Shelby Young. I was born and raised in Louisville, Kentucky along with my two sisters Lauren and Bailee who both happen to have Down Syndrome. I am the middle child, so I had a unique experience growing up and had the opportunity to see how services and supportive opportunities for those […]

Read More
Translate our Site »