Board Spotlight – Meet Sarah

rosenI was born and raised in Louisville with my 2 older brothers (Jason and Josh – yes I am the baby and the only girl). My father was a Home Builder and my Mother was a Registered Nurse and homemaker.

I attended St. Bartholomew for elementary and middle school. Graduated with Honors from Assumptions High School. Gained my undergrad at Eastern Kentucky University and finished my MBA at the University of Louisville. I have worked with Humana now for 16 years, which is where I met my Husband on day one. ☺

DSL came into my life at a much unexpected time. Our daughter Lola was born on May 26, 2010. At the time of her birth she was diagnosed with Down syndrome. My husband and I naturally were in shock of this and were not sure how we should or could navigate this diagnosis. That is until DSL came into the picture that very next day. Instantly providing us with education and support to help guide us along this journey. DSL connected us right away with First Steps so that we may get Lola the early intervention/therapies that she needed.

We soon began to attend the infant classes where we were able to meet other parents and to begin to develop new friendships that remain today!

Early 2012, we found out that we were pregnant again! We were so excited to be able to have another child and to give Lola a sibling. At 21 weeks, after having the T21 test (noninvasive blood test) we found out that our son Oliver would also have Down syndrome. Our hearts sank. This wasn’t the result we were expecting. Similar to our first birth diagnosis, there were tears, guilt, anger, and lots of unknowns.

However, we realized that we now had the tools, the knowledge, the support, and DSL family to guide us threw once again. You see, we already know the beauty of Down syndrome and the sense of “family” that exists in the Down syndrome community.

Fast forward to today. Lola is a smart, beautiful, outgoing, dance-loving, cheetah print-wearing 11-year-old. Oliver, is the smart, funny, quirky, million-dollar smile boy that just turned 9 in December. Time sure does fly when you are having fun!

Down syndrome is a beautiful journey we had never planned on, but would never dream of leaving because we know what it’s like. We treasure our experiences at face value, we slow down and enjoy the little moments in life, we celebrate every single milestone (big or small), and most of all, we celebrate life, because our lives are better with Down syndrome in it.

I have been a member of the Board now for over 2 years. My commitment to DSL is to simply pay it forward. Which is the least that I can do, given how much DSL has given to our family.

sarah

Tagged Items:

Similar Articles

DSL Setting the Standard!

DSL leadership spent this past week/weekend at the annual Down Syndrome Affiliates in Action Leadership Conference in Dallas! The conference is an opportunity to learn and grow by sharing best practices with other Down Syndrome Associations across the country. DSAIA’s Accreditation program helps organizations achieve excellence in nonprofit management and honors best practices. The DSAIA […]

Read More

Welcome Suzanne!

Please welcome the latest member of the Down Syndrome of Louisville team, Suzanne Johnson! Suzanne joins DSL as a new Academy Teacher. Suzanne was born and raised in Louisville.  She is a former elementary school teacher who found DSL at the perfect time in her career.  “I couldn’t be happier to be working in such […]

Read More

Sacred Heart Academy & Trinity High School Supporting DSL!

Sacred Heart Academy and Trinity High School held their 13th Annual Rock the Heart charity lacrosse game in the fall. This year, both teams chose to raise money for Down Syndrome of Louisville due to personal connections they have with our organization. Morgan Keesaer, who plays for Sacred Heart, has a younger sister who has […]

Read More

Celebrate WDSD at the Big Four Blue & Yellow Bridge!

Celebrate World Down Syndrome Day on March 21st with your DSL family!   Thanks to the Smothers Family, the Big Four Bridge will be lit blue and yellow on Thursday, March 21st to celebrate World Down Syndrome Day. Join your DSL family for dinner that night at Pig Beach BBQ from 5-8. Pig Beach BBQ […]

Read More

Starlight’s Special Blend: Crafting Bourbon and Connections for DSL

In a heartwarming display of generosity and community spirit, the Cochran Family in collaboration with Starlight Distillery, recently made a significant contribution to Down Syndrome of Louisville (DSL). Funds were raised through the sale of specially crafted bourbon bottles. With unique endeavor not only raised funds for a noble cause but also brought people together […]

Read More

Local Gymnastics Facility Partners with DSL Academy

  We are so excited to be partnering with Power and Grace Gymnastics in Prospect! Our Adult Academy members are visiting this trampoline and gymnastics facility once a week and having a wonderful time! P&G are generously offering their space and staff to our Academy members each Wednesday morning for free. Thank you so so […]

Read More

DSL Family Adopts Those in Need

A huge thank you to the Robinson crew that provided three bags of groceries for our families in need. With the help of the Robinsons, 20 families were provided groceries for those in need as part of our adopt-a-family program this holiday season! Thank you again to all of those who helped take care of […]

Read More

DSL Indiana Volunteer Shops for Members

Thank you so much to all of the friends of DSL that make for a happy holiday season for our members! Indiana volunteer Kirk did some holiday shopping for some of the Down Syndrome of Louisville Indiana members. Kirk owns Kleaners, LLC and each month a portion of their profits are donated to DSL- we […]

Read More

DSL’s Katie Croom wins Sunshine Award at Mission BBQ

  On Dec 4th,  Katie was presented with the Sunshine Award during the Mission BBQ Christmas party. The award is reserved for someone who radiates positivity and comes to work excited, happy, and grateful to be there. Katie has been a tremendous asset to her team and is well cared for and respected. Her coworkers […]

Read More

Join NDSS on Capitol Hill for World Down Syndrome Day!

Calling all advocates! The National Down Syndrome Society is headed back to Capitol Hill on World Down Syndrome Day, March 21, 2024, for our Down Syndrome Advocacy Conference! This annual event in Washington, D.C. brings our community together to advocate for legislative priorities that impact the Down syndrome community. All families are invited. You will […]

Read More

DSL on Seeing Ability Podcast

  DSL Parents, Tonya Shown and Danny Slaton, joined our Executive Director, Julie Torzewski, on the Seeing Ability Podcast this week to share about our amazing members and all that DSL does for our community. Check it out here!

Read More

DSL on Talk About Town Podcast

  Our very own Sam Roach, Julie Torzewski, and Tim Curtis were just on the Talk About Town podcast sharing about DSL and our amazing members! Check it out: https://fb.watch/o0KPiTy1AJ/

Read More
Translate our Site »