Board Spotlight – Meet Sarah

rosenI was born and raised in Louisville with my 2 older brothers (Jason and Josh – yes I am the baby and the only girl). My father was a Home Builder and my Mother was a Registered Nurse and homemaker.

I attended St. Bartholomew for elementary and middle school. Graduated with Honors from Assumptions High School. Gained my undergrad at Eastern Kentucky University and finished my MBA at the University of Louisville. I have worked with Humana now for 16 years, which is where I met my Husband on day one. ☺

DSL came into my life at a much unexpected time. Our daughter Lola was born on May 26, 2010. At the time of her birth she was diagnosed with Down syndrome. My husband and I naturally were in shock of this and were not sure how we should or could navigate this diagnosis. That is until DSL came into the picture that very next day. Instantly providing us with education and support to help guide us along this journey. DSL connected us right away with First Steps so that we may get Lola the early intervention/therapies that she needed.

We soon began to attend the infant classes where we were able to meet other parents and to begin to develop new friendships that remain today!

Early 2012, we found out that we were pregnant again! We were so excited to be able to have another child and to give Lola a sibling. At 21 weeks, after having the T21 test (noninvasive blood test) we found out that our son Oliver would also have Down syndrome. Our hearts sank. This wasn’t the result we were expecting. Similar to our first birth diagnosis, there were tears, guilt, anger, and lots of unknowns.

However, we realized that we now had the tools, the knowledge, the support, and DSL family to guide us threw once again. You see, we already know the beauty of Down syndrome and the sense of “family” that exists in the Down syndrome community.

Fast forward to today. Lola is a smart, beautiful, outgoing, dance-loving, cheetah print-wearing 11-year-old. Oliver, is the smart, funny, quirky, million-dollar smile boy that just turned 9 in December. Time sure does fly when you are having fun!

Down syndrome is a beautiful journey we had never planned on, but would never dream of leaving because we know what it’s like. We treasure our experiences at face value, we slow down and enjoy the little moments in life, we celebrate every single milestone (big or small), and most of all, we celebrate life, because our lives are better with Down syndrome in it.

I have been a member of the Board now for over 2 years. My commitment to DSL is to simply pay it forward. Which is the least that I can do, given how much DSL has given to our family.

sarah

Tagged Items:

Similar Articles

A bittersweet message from our Executive Director

Read More

Welcome Ashley C

Please help us welcome DSL’s new Teen and Adult Transitions Manager, Ashley Corley!     Hello DSL members, families and friends, My name is Ashley Corley, and I am the new Teen & Adult Transition Manager! Down Syndrome of Louisville has been a place near and dear to my heart for many years. For those […]

Read More

Meet our 2024 Annual Award Winners…

Citizens of the Year: Trenton Brunner & Corey Morgan For Outstanding Achievements in the Down Syndrome Community A few things shared about them: “Corey is a true kindness warrior. He works two jobs at Home Depot and Walgreens where he gets praises from his bosses. Corey participates in many sports through specials Olympics. He created […]

Read More

Welcome Jon B

Please give a warm welcome to DSL’s new Engagement Coordinator Jon B! “Hello! My name is Jon Beams! I first learned about DSL years ago through volunteer programs and the robust community in and around Kentuckiana. I believe in bringing positive experiences and fun with me everywhere I go. A smile truly speaks a thousand words! […]

Read More

Welcome Sydney and Carrie!

DSL’s new Preschool is up and running thanks to our new team members! “My name is Sydney Bastin and I am so excited to lead the new DSL preschool program! With a bachelor’s in health science from Spalding University, and experience at several nonprofits in the area including Sproutlings Pediatric Daycare and Home of the […]

Read More

Club 21 with Gravely Brewing Co

Join DSL at Gravely Brewing Co for our first-ever beer release! We’ve partnered with Gravely Brewing Co for our first-ever beer, the “Boogie Down Brew”! Join DSL at Gravely on Friday, October 11th from 5-8 for our official beer release! Enjoy not only a fresh beverage but also a performance from the Boogie Down Crew! […]

Read More

A Derby Double for DSL!

Win a piece of Derby 150 History While Supporting Down Syndrome of Louisville   Nonprofit Benefits from Raffle of Winning Jockey’s Oaks and Derby Pants Click here for DSL’s Press Release Louisville, Ky. (May 5, 2024) – Following their attendance at the Down Syndrome of Louisville (DSL) Gallop Gala in April, jockey Brian Hernandez and […]

Read More

2024 Gallop Gala Recap

    View this post on Instagram   A post shared by Jonathan Cullen (@joncullen_video)   View this post on Instagram   A post shared by Jo (@uraveragejo) Download your 360 photobooth videos

Read More

New DSL Committees

DSL Families, We are launching NEW DSL Volunteer Committees and we are excited to have our families participate. Please scroll through these photos to see the new committees forming and if you are interested in any of them fill out the form below. These committees will meet 4-6 times a year (some in-person/Some virtual) but […]

Read More

Glamming for Gala 2024 Recap



Read More

DSL Visits the Capitol!

Three members of the Adult Developmental Academy got to go to Frankfort to participate in the Sunny Pages program. They also got to make an informational video about World Down Syndrome Day, and the Rock Your Socks movement.  Sam, Joe, and Connor got to be honorary pages on the Senate floor for the day. They […]

Read More

DSL’s David DeSanctis Honored in New York

A star-studded event was hosted in New York City and it was a night of celebration to raise funds to support the Down syndrome community. This impactful evening will honor trailblazer and Life Goes On actor, Chris Burke, and others who have helped expand representation for our community in film and television.     Follow […]

Read More
Translate our Site »