Sibling Support

New Siblings

Welcoming a sibling with Down syndrome can sometimes be confusing or overwhelming.

There are many resources and individuals who have been there that can help support your children. We have some great books in our resources library.

A built-in family of friends filled with comradery, support, and encouragement for siblings ages 13 & up. This group also helps to lead and mentor our young siblings!

Join our Sib Squad FB group for all the updates, info, and extra support. You can also email a sibling at This email address is private and goes directly to a sibling who is here to support you.

Sibling Fun

Siblings ages 6-12 meet quarterly (virtually during COVID restrictions), then in person during Kid’s Night Out. Sib Fun builds community and understanding about Down syndrome and will be led by Phoebe Hellmann, DSL’s Psychology Intern! Interested in attending an upcoming Sib Fun night? Learn more & RSVP here!

It is not uncommon that adult brothers and sisters assist or are responsible for the well being of their sibling with Down syndrome. Down Syndrome of Louisville’s staff are available for consultation and provide you with the Adult Sibling Toolkit. A comprehensive checklist of topics including guardianship, special needs trusts, medical and much more.

Other Family & Sibling Support Resources:

Engagement Director

Carly Riggs

Engagement Director

School Age Manager

Susan Teaford

School Age Manager

Director of Clinical Services & Children’s Programs

Jenny Kimes

Director of Clinical Services & Children’s Programs

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