Sibling Support
At DSL, we are honored to celebrate our siblings! We offer resources and programs for siblings of all ages.
New Siblings
Welcoming a sibling with Down syndrome can sometimes be confusing or overwhelming. We can help you connect you with families who are similar to your own or have been through similar circumstances.
There are many resources and individuals who have been there that can help support your children. Contact Tammy Gilles, Family Engagement Coordinator for support. tammyg@dsoflou.org
Great Books for Sibilings
- Check out our Amazon List of great books on Diversity & Inclusion for all ages.
Sib Fun (Ages 6-12)
Sib Fun builds community and understanding about Down syndrome and will be led by Phoebe Hellmann, our Behavior Health provider, and an older DSL Sibling. Interested in attending an upcoming Sib Fun night? Contact Phoebe at phoebeh@dsoflou.org
Sib Squad (Ages 13 & Up)
A built-in family of friends filled with comradery, support, and encouragement. This group not only supports each other but also helps to lead and mentor our young siblings. Interested? Contact Carly Riggs at carlyr@dsoflou.org
Guardianship
It is not uncommon that adult brothers and sisters assist or are responsible for the well-being of their sibling with Down syndrome. Down Syndrome of Louisville’s staff are available for consultation. We can also provide you with:
- NDSS Adult Sibling Toolkit: a comprehensive checklist of topics including guardianship, special needs trusts, medical, and much more.
- Learn more about Guardianship here.
Additional Support
- DSL Staff Support:
- Tammy Gilles, Family Engagement Coordinator – tammyg@dsoflou.org
- Phoebe Hellman, Behavior Health Provider, phoebeh@dsoflou.org
- Dr. Jenny Kimes, Director of Clinical Services & Children’s Programs – jennyk@dsoflou.org
- Sibling Leadership Network– Provides siblings of individuals with disabilities tools to advocate for their sibling and for issues important to their family.